Aden and Alexandria
(This was partially written the morning of her 50th day while Alexandria slept on Kim, and partially in the middle of the night after her passing)
With Alexandria’s episodes becoming more pronounced I knew it would be difficult for us to handle Gabriel and Ethan during those episodes. I took them over to Amber and Joy’s house across the street so they could play with Ellery and Emerson until Harry and Gretta got here. They have been such good friends and we’re very blessed to have friends that close. Aden came home from school shortley after, but we kept him home because he’s fairly self-sufficient in his “after school” pattern.
Douglas and Alexandria
After a few rough episodes we decided it would be good to let Aden and Gabriel hold her again. I gave Aden the opportunity to hold her and he was thrilled, but decided on his own that he was done. I went over and got Gabriel, brought him home so he could hold her, and then took him back to Amber and Joy’s.
I picked them up around 6:30pm or so, got Aden some dinner, then put all three of them to bed.
Gabriel and Alexandria
Gretta and Harry arrived shortley before 6pm and they held Alexandria for a while, and stayed up with us late while Alexandria had several episodes. They seemed painful to me, her breathing would slow, her heart would slow, and she’d snap back. When she snapped back she’d cry… and I just couldn’t take that. I did not want her last moments to be in pain like this. I had forgotten how heart wrenching the episodes in the hospital were… I called hospice and I asked them if we could increase her morphine dossage, and after speaking with Dr. B they gave us new instructions to help keep her comfortable. There was one point near 11pm where we were sure she was leaving, called hospice to have Jessica come out, but she snapped back and we cancelled having Jessica come out.
Harry and Alexandria
Aden and Alexandria
Gretta and Alexandria
