Early this morning, around 7am, Alexandria’s breathing stopped briefly and the alarms went off. I rubbed her back, talked with her, and she started right back up, but it was a scare. It was the only occurance today. When I went to call Kim the phone had run out of battery life so I ended up yelling and banging on the wall till she heard me. Her color most of the morning was gray, but she pinked-up after lunch. Dawn (social worker) from Hospice came by around 1pm, Jessica (nurse) is going to come by on Wednesday. Dawn, Kim, and I talked about Hospice costs. Kim and I are considering paying for Children’s Special Health, something we haven’t done since Aden was a baby, to help offset what our primary insurance doesn’t pay for.
Alexandria was fragile enough today that I didn’t offer the very nice people who came with a meal if they wanted to hold her. I didn’t want to introduce anything new to her immune system, they left so quickly I didn’t get a chance to explain, I hope they understand. She’s quite weak tonight, pink, but drained. If only her sinuses would drain like her energy has. She’s still producing lots of flem, a phase of the cold I thought she has passed by… but definately not.
Aden was interested in holding Alexandria tonight, as you can see above. I wasn’t about to stop that, it’s the first time. For the most part he’s ignored her, but there’s clearly an attachment beneith the surface, I was stunned when he leaned down and kissed her. He is very touch sensative and rarely kisses anyone, even Kimberly and I.
Doug & Kim — I am thinking about you a lot. What beautiful stories you have. And the photos are priceless! What a gift with Aden & Alexandria! How cool that he normally doesn’t like touch or kissing, but felt compelled to share with his sister. What a gift. Love to you all.
Doug & Kim, Lori W. (from church) passed along your update. Your family’s story is so touching. Jillian & I so enjoyed meeting your little men, Gabe & Aden, at the door yesterday. We had no expectations of holding your little angel, Alexandria. –just dropping off dinner.
You’re in our thoughts and prayers–
The Meade family