Original Text of an E-mail from Douglas to Family/Friends
Alexandria had a fantastic night… Dad didn’t. About 3am my body said, “Ok, this is enough already, ya’ll are done!” I haven’t been taking the medications for my back so that I’m not sleepy and have occasionally been having increasingly worse symptom’s related to the disc in my neck (arms tingly, pain spiking down them, numbing, but nothing serious). So around 3am my legs were on fire with radiating pain… I hadn’t felt that since I aggravated my neck in a fall a few years ago. I guess 13 days is my limit. I woke Kim up and asked her to take Alex. I was able to get 4 hours of sleep lying flat and when I woke up the pain was gone. I got up and took over for Kim around 7am. Pastor came by around 11 to pray with us and check on how we were doing. Aden and Gabriel decided to put on a show for him by running around in circles. Gabriel continues to interrogate pastor about his IPAD, he just can’t get over the fun factor of “swishing” pictures on a screen. Alexandria didn’t have an episodes this morning, although her breathing had seem a little labored. Things went well enough that I went into work around noon.
A little after 1pm Kim called me at work to tell me that Alexandria had an episode, but that she didn’t want me to come home. She called again at 3pm after a worse episode and I left work immediately to come home. Alex’s breathing is definitely labored today.
Gabriel asked why Alexandria was going to die today. He asked question after question about why she was sick, why she was going to die, why was she made differently, etc. We did our best to answer them. It’s clearly still on his mind. We have a few books but they don’t seem to convey our situation. I think Kim and I may need to write one ourselves.
Harry and Gretta are going to take Aden and Gabriel back to Midland with them for the weekend tomorrow morning.
Kimberly and Alexandria (13d old)
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