10 Days Old

Original Text of an E-mail from Douglas to Family/Friends

Alex had a good night, no major episodes and the day was fairly uneventful.   She did have one minor respiratory issue in the morning, but it only lasted a few minutes.  She drank well when she got up, but then wasn’t as hungry as the day went on.  A few people have sent notes about what “a lot” means and we have heard that one good nurse was worried she maybe was eating too much. J  “A lot” means she’s drinking 20ml (or a little more than a Tablespoon) in a few hours.  There are times when she won’t eat for 6 hours, then only drink 5ml, then maybe 10 a half hour later.  We’ve learned her signs for “enough” and are careful to make sure she doesn’t get enough so that she’d aspirate what she drinks.

We had almost everyone here on Monday, Mom and Dad Bash, Michael/Lisa and the twins, Bonnie, and Marybeth/Bob/Robby/Meghan (Henrys).  It was good to have everyone here, to see her, hold her, and share her life with us.   Mom, Dad, Bonnie and the Henry’s headed back before it got dark.

Michael and family will head home tomorrow.  I got the feeling that they were a little worried that the twins were stressful for us, but not at all.  Their kids were great and helped keep Gabriel and Ethan busy and happy.  I just hope the craziness wasn’t too much for them. 🙂

Hospice called this morning and we’ll have a visit with our social worker tomorrow and our nurse on Friday.