Posted by Kim on Facebook
Came across an inspiring blog today (http://ninetynineballoons.com/) about a family with a little boy Eliot who lived 99 days with T18. Liked what his dad said – “The heart makes a terrible student, but a great teacher. Ever illuminating the fact that walking through something never feels like you thought it would, and exposing foolishness at thinking you could fathom a path unwalked.”
What was inspiring wasn’t that he lived so long.. I’ve read lots of stories where kids (especially the ones with Mosiac T18) live quite awhile. What was inspiring was they were very open and honest, they celebrated every single day knowing every one was a gift, they were not in denial of his mortality, life went on after he died but they never forget.
After reading this site I suddenly felt at peace.. even hopeful that we might get to see her alive. I don’t know how long it will last. Maybe I just couldn’t grieve anymore.
